****ANNOUNCEMENT - TRANSITION TO NEW GRANT PORTAL SYSTEM****
UPDATE - February 26, 2025!
We wanted to provide an important update regarding the transition to our new grant portal system.
New Launch Date:
We are excited to announce that the new grant portal will officially launch on March 7, 2025. This new system is designed to enhance your experience with improved functionality and user-friendly features.
Transition Details:
To ensure a smooth transition, please take note of the following key points:
- Access to Current Portal: The current grant portal will remain accessible until Feb 28, 2025. After this date, all activities will need to be conducted through the new system starting March 7, 2025. New link will be sent to our current users and will be posted on our corporate website.
- Data Migration:
- All your existing data will be migrated to the new portal, and you do not need to take any action
- Active records (i.e., still pending reconciliation and within the window of program closure) will be migrated by March 21
- We will have access to all historical data and records (including recently closed programs) if you have any questions.
- Login Credentials: All users will be asked to register themselves and their organization in the portal to ensure accurate capture of their information
- Training and Support: We will provide user guides and support to help you navigate the new system. This information will be posted on the website as well as through email
We appreciate your patience and cooperation during this transition period. Should you have any questions or require assistance, please do not hesitate to contact our support team at grants@biocryst.com
Thank you for your continued partnership.
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February 7, 2025
We are excited to announce the transition to our new and improved grant portal system, designed to enhance your experience with more efficient and user-friendly services.
What to Expect:
- Transition Timeline: The current platform will be inaccessible starting February 28 as we migrate data to the new system. We will announce the launch date of the new system at this time.
- Action Required: Please complete or save any ongoing activities before February 28 to allow for a smooth transition to the new system.
- Support and Assistance: Our support team is available to assist with any questions or issues during the transition. We will provide further updates and instructions on how to submit in the new system once the launch date is announced.
Your feedback and cooperation are invaluable to us, and we are committed to making this process as seamless as possible. If you have any questions or need assistance, please contact our support team at grants@biocryst.com
Thank you for your understanding and continued support
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This site is intended to be used for submitting requests for support of:
- Medical Educational Requests: Support for independent accredited or unaccredited medical education activities or education directed to healthcare professionals, healthcare organizations, patient organizations, patients, or other members of the healthcare community.
- Patient Advocacy Organization - Charitable Contributions: Financial or in-kind contributions to patient advocacy groups and organizations with not-for-profit status, where the primary purpose of the contribution is charitable or philanthropic to support the general mission/activities of organizations. Contributions are intended solely for charitable purposes, which means BioCryst receives nothing of value in return other than the customary acknowledgement of support. Unlike for Sponsorship requests, BioCryst does not expect to receive any benefit, consideration, or service in return for Charitable Contributions to patient advocacy organizations.
- Sponsorships Requests: Funding to an eligible entity including patient advocacy organizations for events or activities in exchange for tangible benefits from the funding recipient, such as the opportunity for BioCryst advertisements at an event or activity, exhibit space at an event, admission to certain events, etc.
- Charitable Contributions: Donations are tax-deductible contributions to support 501(c)(3) and 501(c)(6) non-profit organizations. The current areas of focus for BioCryst are to promote health-related programs outside of BioCryst therapeutic areas for 501(c)(3) organizations, certain charitable events in support of community health and health education, wellness, scholarships or supporting the education of pharmacy students and to support programmatic activities and scholarships of 501(c)(3) organizations, including hospital foundations.
Our Areas of Interest include:
- Medical - Hereditary Angioedema (HAE):
- Defining overall disease burden for patients, families and others impacted by HAE/ bradykinin-mediated angioedema
- Understanding the impact of HAE disease and unmet needs of underrepresented patient populations
- Understanding HAE disease and treatment burden on quality of life (including physical and mental health impacts) on patients and caregivers
- Healthcare utilization costs and financial burden of HAE
- Evolution of understanding and classification of bradykinin-mediated angioedemas (i.e. HAE normal C1-INH, hereditary, acquired, contact pathway mutations)
- Redefining HAE/bradykinin-mediated angioedema disease management goals and optimal outcomes
- Diagnosis, management and outcome measures of success for patients living with HAE/bradykinin-mediated angioedema
- Review of treatment guidelines/recommendations
- Individualizing support and shared decision making to improve patient experience and long-term goals for success
- Options on switching from previous prophylaxis, on-demand treatment, and patient-specific considerations for approved therapies (individualized approach)
- Diagnosis and management of pediatric patients with HAE/bradykinin-mediated angioedema
- Patient Advocacy:
- Local, regional and global patient advocacy focused on:
- Hereditary Angioedema (HAE)
- Rare hematological conditions
- Kidney conditions
- Vision loss
- Rare dermatological conditions
- Broader rare disease community